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Wednesday, August 16, 2006

So much sad news floating around me lately..

In the past month:

A friend losses her unborn baby boy to Trisomy 18

Another had emerg C-sec to deleiver her baby girl at 31w, and has since found out her DD has Trisomy 22 Down syndrom, Yes many children with Downs can still do many things as I know little D will be ok she has a wonderful mommy and daddy and brother and sister that love her so much already. her mommy posted this is what there lives are like right now.

By: Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you never would have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around and you begin to notice Holland has windmills and Holland has tulips. Holland even has Rembrandt's.

But everyone you know is busy coming and going from Italy and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say, "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away because the loss of that dream is a very, very significant loss.

But if you spend your life mourning the fact that you didn't get to go to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.

And now anther has just found out her DS has leukemia, he is in the hospital right now he is about 3yrs old he is get transfusions.

This is when you wonder why do these things happen, WHY! Children are so inoccent but yet this happens to them.......... what have the ever done?

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